First Name: Sandy
Location: Jacksonville, Florida
Years with Migraines: 40+
Occupation: Retired, formerly an Intelligence analyst with the Drug Enforcement Administration for 34 years
How long have you had migraines?
I have been getting migraines since the mid 1970s. They have increased in frequency. Since I moved to Florida I generally have them every day from April until September/October due to the humidity. I am considering moving to Nevada but I also have a disorder of the immune system called Sjogren’s, so it might cause other issues to get worse. The barometric pressure is a trigger as well.
When do you usually get migraines?
The barometric pressure and high humidity are factors. Foods do not seem to be triggers at all.
What have you tried pre-Cefaly?
I have tried neurotoxin injections and triptans. I am currently taking a prescription drug as a migraine preventive that’s often used to prevent epileptic seizures. I have a prescription for a triptan as a rescue medication if all else fails. I don’t like to use the triptan because it makes me feel weird. I also have an ice pack that I can “velcro” around my head that is pretty effective (my low tech attack). The triptan is the last thing I use. If it’s the heavy humidity sometimes nothing works. I am anxiously waiting for the infusion studies being done by the FDA. They look promising.
What does your migraine feel like?
The pain is usually on the right side of my head and it feels like a vice is wrapped around my head and is slowly tightening to the point where my head is going to explode. Many times I wish it would. On a scale of 1 to 10 it’s about a 14.
How did you hear about Cefaly?
My brother worked for the FDA at the time it received approval by the FDA. He knew I got migraines and told me about it. I spoke to my neurologist about it and he provided a prescription.
What’s your Cefaly experience like?
It has mostly been effective. Because I live in Florida and my problem is the humidity the relief is sometimes only temporary because the humidity is a constant. I’ve used the Cefaly up to twice in one day. I’ve been using the device about two years and I have the newer version of the Cefaly now.Iit took about a week to get use to the sensation. I couldn’t let the device run its full course for about a week, it was too much but I’m very used to it now. The phase near the end is still a bit intense but I can handle it. For the most part my migraines are a reaction to the weather. I do not use the Cefaly unless I have a headache, so in that regard the Cefaly has no effect on the number of headaches I experience. I like the Cefaly as a treatment option because unlike the triptan (my treatment of last resort) it doesn’t make me feel weird. I take a lot of medications for a variety of other issues and would like to avoid taking any thing else if possible.
What made you want to share your story?
Migraines are awful and anything that helps should be put out there to a wide audience so everyone that suffers can become aware.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.