Cefaly offers distraction from migraine pain

First Name: Rhonda
Age: 56
Location: CA
Years with Migraines: since 8/2010
Occupation: retired homemaker, RN, BSN, JD

How long have you had migraines? 
Migraines started the day after a fall from a segway in August 2010. The first year or two the migraines were solely of the ophthalmological type. They occurred the minute I awoke each morning around 4:30-5 am and lasted for a few hours. I was occasionally dizzy, rarely nauseated, but had extreme visual auras for the duration.  By mid-June 2014, the migraines were significantly worse.  I had tinnitus; severe nausea; a “trickling” and visceral pain diffusely through my entire skull; muscle tightness/spasms in arms, back and legs; photophobia; phono phobia; anxiety; occasional inability to speak and/or to find the correct words, much like stroke symptoms.

When do you usually get migraines?
Typically I just awake with the migraine in full force. I rarely have triggers as I avoid the only known trigger of artificial food color dyes.

What have you tried pre-Cefaly?
SSRIs, vitamins and supplements, neurotoxin injections, beta blockers, physical therapy, massage, acupuncture, biofeedback, MBSR, meditation and myofascial release therapy.

What does your migraine feel like?
Typically my migraines involve constant aura, nausea, intermittent to consistent dizziness, the trickling/visceral feeling in my head, GI issues. Occasionally have whole body muscle tension/tremor, forget or unable to access words.

How did you hear about Cefaly?
Consulting psychiatrist

What’s your Cefaly experience like?
I started with the “old” style tiara-like Cefaly. It was not really marketed to those w/ chronic migraine, but we decided it could not hurt to try.  I used (and still do) it twice a day for the duration of the pre-set cycle.  It never apparently prevented, or even stopped, a migraine.  It never apparently reduced the duration or frequency.  Since 2014, I have had migraines every day, beginning as described above.  Most days, the migraines back way off by mid-morning, and return around 4:30-5 pm.  The Cefaly, both the wonderful new tiny version, and the old, had the best effect for me in terms of either decreasing my nausea or making me less aware of my nausea.  It helped me eat.  There is no way to separate all the different medications and therapies into neat slices of how much/what they do for me.  I do  know the Cefaly helps ME combat nausea and/or the effects of nausea.  There is no way to prove or disprove that it does not in some way reduce my migraines in terms of severity, frequency, and duration.  As with most migraine sufferers, if we think that something is helping, we are NOT going to stop taking it, using it, doing it.

What made you want to share your story?
Cefaly gives me definite relief/distraction from nausea and that is the most difficult symptom to ignore/power through.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

Tagged with: , , , , ,

Sandra: nothing has helped except the Cefaly device

First Name: Sandra
Age: 67
Location: Macungie, PA
Years with Migraines: 54
Occupation: Retired (former case worker for children and youth’s services and an organist and choir director) 

How long have you had migraines?
I’ve had migraines for 54 years.

When do you usually get migraines?
I avoid alcohol because if I have a small glass of wine within 20-minutes I’ll have a major migraine. I stay on a very strict schedule with my meals and sleep.

What have you tried pre-Cefaly?
I’ve seen neurologists locally, in fact several told me mine is the worst case of migraine they’d ever seen. I’ve been to Philadelphia, New York and Chicago to see specialists. I’ve been hospitalized four times for migraines that I could not get to stop. I’ve tried every medication and only four medications have worked but after a period of time they stopped working (even if f the doctor would increase the dosage) it wouldn’t help. I tried acupuncture for 10 years, massages, and biofeedback for a year a half. I’ve been to many chiropractors, different diets (including going gluten-free), herbs and supplements, increased magnesium. I’ve also have neurotoxin injections and nerve blocks and none of that has worked for me. I still occasionally use Zolmitriptan to abort a migraine but I’m not on any preventive medication anymore.

What does your migraine feel like?
It feels like my head is exploding; my whole head. There’s so much intense pressure I can’t stand the pain. The migraine will usually lasts from 18-20 hours and with that I have nausea and vomiting and during that period I can’t keep anything in my stomach, including water, so I feel dehydrated and that makes my migraines worse. On average I have 12-15 migraines a month. Before Cefaly, I’d never gone a month without a migraine.

How did you hear about Cefaly?
My neurologist mentioned it and said I should try it.

What’s your Cefaly experience like?
I started using the device July 20th (2018), I did the 20-minute session starting at 6 pm and it had no effect. Then I switched it to 11 pm and it still had no effect on me. I was still getting the migraines but it would help when I used the 1-hour acute treatment during a migraine. I was afraid I was going to have to send the device back. Then I thought 99-percent of the time my migraines start between 4-6 am so I started setting my alarm for 3:30 am every day and using it for 20-minutes and going back to sleep and that’s’ when it got rid of the migraines. It seems if you have a migraine that’s really on schedule, if you use the Cefaly device right before, even an hour before, you expect the migraine to start, it helps. I basically stopped getting the migraines. So since August 18th when I started using it at 3:30 am for 20-minutes until the end of the month I only had two migraines. I used it for the one-hour treatment to abort and one time it helped and the other it didn’t. The next migraine was August 31st, which was a real miracle for me to go over a month and a without a migraine. The next one was October 18th.

What made you want to share your story?
Just to let everyone know the success I’ve had because my migraines have been over a long period of time. I’ve had very severe migraines and I’ve tried all sort so of things and nothing has helped except the Cefaly device. I also want people to know that if you have a migraine that tends to start at the same time every day, before you give up, change the time you’re using your device to be within an hour before your migraine starts, that changed everything for me.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

Tagged with: , , , , , , , , ,

Cefaly helps Cari reduce her migraine days

First Name: Cari
Age: 53
Location:  Morgan Hill, CA
Years with Migraines: 34 years
Occupation:  Compensation Analyst

How long have you had migraines?  
34 years

When do you usually get migraines? 
I wake up with them in the morning.  I also have triggers, like: certain foods, too much sleep, too much sun, altitude.

What have you tried pre-Cefaly?  
Many things!  A variety of medicines, chiropractor, acupuncture, cranial sacral body work.

What does your migraine feel like?  
I do not get an aura like some do.  I get intense pain – usually one side much more than the other side of my head.  I get nauseous and am sensitive to light and sound.  They last anywhere from a day to a couple of days.

How did you hear about Cefaly? 
My neurologist prescribed it.

What’s your Cefaly experience like? 
I have been receiving neurotoxin injections for migraine for about 4-5 years.  I have been using Cefaly for about 2-3 years.  The combination is making a huge improvement in the frequency of the migraines.  I used to get them about 15-20 days a month.  Now, I get them 2-5 days a month.  I use sumatriptan when I feel a migraine coming on.  I recently got the Cefaly Dual to see if it could help eliminate a migraine once it starts.

What made you want to share your story?  
It might help others.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

John: I take Cefaly with me wherever I go

First Name: John
Age: 54
Location: Stamford, CT
Years with Migraines: 25
Occupation: Architect

How long have you had migraines?
I’ve had migraines for 25 years now.

When do you usually get migraines?
I suffer migraines about 20-days in a month, so I’m a chronic sufferer. I think it’s what we eat that
causes a lot of these problems but I’m not an expert at it.

What have you tried pre-Cefaly?
I’ve tried everything. I’ve tried different preventive and acute medications. I tried different
alternative treatments and holistic treatments.

What does your migraine feel like?
When it starts I get it in the eye socket though sometimes it starts in my forehead. It’s like a brain
freeze that doesn’t stop. When the bad ones come I can’t eat. I can’t work. I’m an architect and I
can’t be on a screen or focusing on anything, I have to go home, put the device on my head, take
an eletriptan if I have it (my insurance only gives me like nine pills a month and I can go through
that in about a week; after that I pay $60 a pill almost), and lie in a dark room.

How did you hear about Cefaly?
My sister-in-law told me about it.

What’s your Cefaly experience like?
I like the device. It helps me mask the pain; sometimes I wear it and do many sessions in a row, I
just keep pushing the button. For me the Cefaly masks the pain until the medication kicks in. I do
take it with me wherever I go. I often put it on and put a cap or something over it.

What made you want to share your story?
It’s a good product and I thought it be a good idea to speak with someone about it. My daughter
uses it now too. It’s not a cure but it masks my migraines and it’s a relief to feel something else
when I have a migraine, so sometimes I just keep it on and keep pressing the button.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

Tagged with: , , , , , , , ,

A Major Study About the Acute Treatment of Migraine Using Cefaly Is Published in the Journal of The International Headache Society

Cephalalgia, the official peer-reviewed medical journal of the International Headache Society, has just published positive results of the American multicentric clinical trial ACME (ACute Migraine therapy with External trigeminal neurostimulation: randomized controlled trial) implemented at Yale and Columbia Universities and at the Rowe Neurology Institute in Kansas.

The results of the study demonstrate the remarkable efficacy of the Cefaly® medical device in treating migraine attacks compared to placebo. The proportion of patients with pain relief after one-hour and 24-hours was significantly higher in the Cefaly® group compared with the placebo group. One hour after the start of the treatment, 29% of the patients were pain-free in the active group and 6% in the placebo group. In the active group, 79% of patients achieved significant pain relief at one hour, compared to 39% in the placebo group.

“We are excited by this publication which demonstrates the efficacy and safety of our technique, it led recently to the FDA clearance for the acute treatment of migraine attacks, and it will support our submission to health insurances for reimbursement in the USA and Europe, “says Dr. Pierre Rigaux, CEO of CEFALY Technology. “We have made significant technological progresses that have increased the efficacy for the acute treatment of migraine attacks. This is three times higher than what we had five years ago with the initial clinical trials. We now have an efficacy similar to triptans, which have long been considered the most effective drugs for acute migraine but without the risks and side effects. It is unique to have a non-invasive, non-drug, treatment that is as effective, if not better, than medication intended for migraine. ”

Cefaly® is an innovative patented medical device and the first external cranial neurostimulator. This technology has been used for years in neurology, but was previously only available through implantable neurostimulators (similar to a pacemaker). The technological advances of Cefaly® now offer a simple, lightweight, economical and comfortable device that provides migraine patients with a non-drug and non-invasive treatment.

Cefaly® neurostimulation is applied to the upper branch of the trigeminal nerve, which is the main nerve involved in migraine. A self-adhesive electrode is placed on the forehead and the device is positioned on this electrode through a magnetic contact that enables precise micro-pulses to be transmitted through the skin to the nerve endings of the upper branch of the trigeminal nerve.

About CEFALY Technology
CEFALY Technology is a Belgium-based company, with US offices based in Wilton, Connecticut, specializing in electronics for medical applications. It has developed external cranial stimulation technology for applications in the field of neurology; in particular for treating migraines. For more information, visit http://www.cefaly.us. Find Cefaly on Twitter: @Cefaly and on Facebook: http://www.facebook.com/CefalyEN.

Acute migraine therapy with external trigeminal neurostimulation (ACME): A randomized controlled trial. Cephalalgia. 2018 November 17: 0333102418811573.

SAGE. https://doi.org/10.1177/0333102418811573

 

 

 

 

Tagged with: , , , , , , , , , , , , , ,