No more 3-day migraines for Claire

Name: Claire
Age: 61
Location: Vancouver, WA
Years with Migraines: 48 years
Occupation: office manager

How long have you had migraines?
I’ve had migraines since I was about 13; when I started my period.

When do you usually get migraines?
I’ll get a migraine when it’s too windy, when it’s too cold, when it’s too sunny or hot, when the temperature changes abruptly, when I talk a lengthy time like in a meeting, or if I laugh too much. If I watch a movie, if I’m with friends all day and have to pay attention to conversations; and just randomly they will come on… so basically all the time.

What have you tried pre-Cefaly?
It seems like everything over the last 48 years. I have tried the beta blockers, anti-depressants, medication for tension headaches, and so forth. In addition to medication I’ve tried acupuncture, biofeedback (I still do the biofeedback I was taught when I get a migraine and it helps to relax me because I want to crawl out of my skin when I get a migraine). I did try massage but not on any regular basis. I do neurotoxin injections now and I have found that to be helpful.

What does your migraine feel like?
The bad ones that lead to a 3-day migraine usually start behind one eye and are like a needle stabbing through my eye and they’re intense and painful. Sometimes I actually take a fist and pound my head because the pounding of my fist is trying to knock that piercing pain out of my head. Those are the ones where it’s three days and I’m vomiting and the sumatriptan or the other pain medications don’t touch it. Then there are the daily migraines where I just have to listen to my head. Those can be a sinus-y type of feeling and be felt behind my eye or in my forehead, or beneath my eyes. If there’s a situation that excites me, like if I laugh too much let’s say, it’ll turn into a migraine. I don’t experience an aura and I don’t get any warning.

How did you hear about Cefaly?
I heard about Cefaly from my neurologist and she told me to do some research on it and I did. I researched it quite a bit and I figured it couldn’t hurt. I take sumatriptan as well as a drug that’s acombination of aspirin, acetaminophen, and caffeine almost every day and after so many years of so much vomiting I couldn’t handle it anymore. I decided that Cefaly was a small investment to pay to try to stop it. Miraculously, it worked. I have used Cefaly for 16 months now and I have not had one 3-day migraine with vomiting in those 16 months, which is truly a miracle.  I have daily migraines, with much less intensity, but I have not had the 3-day in bed migraine with the piercing behind the eye.

What’s your Cefaly experience like?
It’s wonderful now, though it was a little disconcerting at the beginning. When I first started using it, I felt like I was going to get a migraine because of the intense tingling sensation. It was hard to press through at the beginning but I did. I am still diligent about it every night. My husband and I just watch a movie and I put on my little Wonder Woman triangle and off we go. The daily migraines persist, but they’re not as intense. It used to be if I got a migraine at work I’d have to take a couple sumatriptan and go into a dark room and do my biofeedback, and sometimes it would stop the migraine, and sometimes I’d have to go home. Now I don’t have to do that. I can just take one sumatriptan and am good to go.

What made you want to share your story?
I think the biggest reason is because I work at a naturopathic clinic and there’s a patient who also has resistant migraines, like myself.  He’s a pilot and he can’t fly if he has a migraine or if he takes certain medications for his migraines, so I told him about Cefaly and he half heartedly used it. I told him about my experience and I told him he had to do it faithfully and if it works for him he can fly without drugs. So I want other people to know this, who might be feeling the same limitation and same loss of hope. Not all of us can pop pills at work, or go lie down in a dark room, and Cefaly has given us a better life. I’m praying it gives the pilot the ability to fly and gives him hope that his migraines will diminish in intensity.  For me,  Forty eight years is a very long time to be vomiting every 3-months for 3-days and feel like you have a dagger in your eye. I want other migraine sufferers to try it. It’s a small price to pay. It may seem like a lot of money,  but compared to the amount of money I used to pay in emergency room visits prior to sumatriptan and the amount I’ve paid for sumatriptan it’s a small investment overall!

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

Lisa: I take Cefaly everywhere

Name: Lisa
Age: 47
Location: Marietta, Georgia
Years with Migraines: 20+
Occupation: Teacher (ESL)

How long have you had migraines? 
I’ve had migraines since I was probably 26. I think it was when I went on birth control pills.

When do you usually get migraines?
I have food triggers, such as: cheese, nuts and chocolate. I have noticed my migraines are worse in the humidity… so they’re worse in the fall and spring when the barometric pressure changes.

What have you tried pre-Cefaly?
For a long time I was only trying the abortive medication. That’s when I was having 6-7 migraines a month but then I started getting about 15 a month.  That’s when I started seeing a neurologist (I was about 44 years old then). I’ve tried several different preventive medications.

What does your migraine feel like?
My migraines are on one side of my head and it’s just really really sharp pains. I don’t have the aura and they’re not debilitating. I used to feel nauseous but that was before I modified my diet to eliminate my triggers and now I don’t.

How did you hear about Cefaly? 
My mom told me about it, and I went online and read about it.

What’s your Cefaly experience like?
I read online that a lot of people say their migraines didn’t go away entirely but that they’re a lot less severe and I’ve found that to be the case for me. I accidentally forgot my device one time when I went on vacation and I was very very sad about that. So, I was wondering how it would affect my migraines that month.  My migraines tend to be hormonal and they were a lot worse that month. I make sure I take it everywhere with me now because they just seem to be a lot less severe.

What made you want to share your story?
If I can help anybody else with their migraines then I want to do that; they’re just so horrible. I’m grateful people are coming out with new treatments and researching migraines.  I think that is awesome; anything to help people who maybe haven’t heard of Cefaly to try it. Migraines are just awful!

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Janna: Cefaly works right away

Name: Janna
Age: 40
Location: St. Paul, MN
Years with Migraines: 20
Occupation: social services

How long have you had migraines?
I’ve had migraines probably for about 20 years but they were only occasional and would come on with my cycle. About 6 years ago they became chronic.

When do you usually get migraines?
I don’t have any particular triggers but if I’m stressed or haven’t slept well I’m more likely to get a migraine.

What have you tried pre-Cefaly?
I’ve tried chiropractic care, acupuncture, biofeedback, physical therapy, neurotoxin injections, and eliminating gluten and corn. I’ve also tried every prescription possible from my neurologist.

What does your migraine feel like?
There are a couple different ones. One of them is sharp stabbing pain that’s like a blade coming through top of my head down below into my right eye. The other one feels like my brain is swollen or on fire. If I move or walk around it feels like the migraine is rolling around free in my head and banging against my skull a little bit.

How did you hear about Cefaly?
My neurologist told me about it.

What’s your Cefaly experience like?
It’s been great. Several years ago I used the Cefaly headband when it first came out and was mainly using it every day as a prophylactic use. My doctor suggested using it when I had headache so I started using that. The majority of time it would eliminate the headache or bring the pain level down. Recently I’ve switched to the DUAL and I use it everyday. It works so well when I feel a migraine coming on. I use the ACUTE setting and it works almost every single time. It’s definitely brought the pain level down. It hasn’t necessarily changed the frequency but it’s for sure lowered the intensity of the migraines.

What made you want to share your story?
It’s been one of the few items or medications that has really done anything; so much with migraines is preventing them so I love I can use this when I have a migraine. I can use it right away and it works right away. I have family and friends who have migraines and even though the cost can be prohibitive at times, it’s so worth it.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Laima: I rarely get migraines

Name:  Laima
Age: 58
Location: Englewood, Florida
Years with Migraines: 30+
Occupation: art therapist

How long have you had migraines?
I’ve had migraines since my early 20s; a couple times a year.

When do you usually get migraines?
It started a couple of times a year, when I was 22 or 23. Then it went to every other month, then about 10 years ago I was starting to get one every week, right about Tuesday. Alcohol and chocolate used to trigger my migraines. I’ve been able to slowly include alcohol here and there. I only have chocolate when I already have a migraine. Lighting is a trigger for my migraines too.

What have you tried pre-Cefaly?
I’ve tried pretty much every medication, head massage, herbs, supplements, teas, etc. The only thing that really worked for me were the head massages and the sumatriptan.

What does your migraine feel like?
It varies and now I have to remind myself to use the Cefaly again because I feel better and I stop. When I feel the migraine coming on it’ll be a stabbing pain on the left side of my head, behind my left eye. I will also have nausea – very bad nausea. I remember when I was driving I’d have to pull over to vomit from a migraine and then keep going.

How did you hear about Cefaly?
I read about it somewhere and I also saw it on a TV news segment.

What’s your Cefaly experience like?
When I first got it I was diligent and after a couple of weeks I really felt a difference. I felt my migraines coming on and thought this is not so bad and this is really doing something. It’s been using it 3-4 years now that I’ve been using it and I hardly get any migraines. I might get a bad migraine every couple of months but it’s not like before where I would have to lie in bed for three days.

What made you want to share your story?
I’ve tried so many things and nothing worked and I’m a very positive and private person but I was at the point where I was considering taking part in a study because I wanted relief. I’d spent so much money on herbs and things, I finally tried Cefaly and it was like a miracle. I rarely get migraines. The Cefaly has made the sumatriptan work even better. If I can help anyone, I want to do it. This is the only thing that’s almost cured me. I had a moment before Cefaly where I felt like I’m not going to be able to work anymore, I was calling out sick so much – and now I hardly get migraines! I tell everybody about the Cefaly device.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Less migraines and less medication

Name: Carmella
Age: 74
Location: Cape Cod, MA
Years with Migraines: 56
Occupation: Retired (middle school and high school math teacher)

How long have you had migraines?
I’ve had migraines since my senior year in high school. I was 18 and I would come home from school on Monday afternoon with a splitting headache and the next day I’d get up early and do the homework that I had to do. They always seemed to be on Monday. They worsened a little in college. Everyone said when I had kids they would go away and they didn’t. Then I noticed they were more hormonal in nature but after menopause I still had migraines. Ten years after menopause I ended up with ovarian cyst, which ended up being ovarian cancer, and everyone thought that was the cause of the migraines but that wasn’t it.

When do you usually get migraines?
My strongest trigger is odor, so if someone is smoking nearby I’ll usually get a migraine. Also, cleaning products; I have to really limit myself either not being here when my husband uses glass cleaner or choosing them more carefully. Obviously the hormonal factors aren’t there anymore but I do keep a fairly accurate record of what’s going on and when I need to take medications. About several years ago I started seeing a neurologist and I learned a lot from him.

What have you tried pre-Cefaly?
Lots and lots of medications and none of them worked. I tried neurotoxin injections but that made things worse.

What does your migraine feel like?
One recurring image that I have is that it feels like a melon baller is scooping out the material in my (usually left) eye.

How did you hear about Cefaly?
My husband and I saw it on the news one night.

What’s your Cefaly experience like?
About a year into using it I realized it wasn’t making them go away but it was really helping. I’ve been using it now for 2.5 years. I just bought the DUAL, I like the idea of the 1-hour treatment. It gives me enough relief where I’m really happy using it. My migraines are less frequent. There are still a couple migraines a month that are really intense (if I wake up with something already in progress I have a harder time getting control of it). The frequency was less and the other medications was less. Now I’m trying to wean myself off of some of the preventive medications. One of the medications is an anti-seizure drug but I’m on a very high dosage of it so I’ve been trying to reduce that. I’m hoping that long term it’s going to get even better.

What made you want to share your story?
I have 3 daughters and they’re in their 40s now. My mother suffered from migraines and my daughters do too and I want to see something in the future that will take away from the debilitating effects these headaches have had on me and have had on them. I want to know about what’s coming out and what’s out there for me. I want to be able to impart what I’ve learned on other people.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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