Location: Arlington, TX
Years with Migraines:
How long have you had migraines?
I was officially diagnosed at 18 but I’ve probably been having them since I was 14 or 15 years old though.
When do you usually get migraines?
We’ve gotten them down to where I’ll have them with my monthly cycle and if there are certain weather changes, I’ll have migraines too. I have food triggers but I stay away from them. The biggest one is actually a low-calorie artificial sugar substitute sweetener made with aspartame. We found that one after many years of trying to identify it. I can’t drink beer or anything with hops in it, that’s probably the biggest food one. Luckily I don’t have problems with cheeses or processed meats but those other things are almost guaranteed to give me a migraine.
What have you tried pre-Cefaly?
Over the years I’ve been on a number of medications. I’ve tried different preventives. Right now I’m on nortriptyline as a preventive and eletriptan for acute pain, which after much trial and error is the right triptan for me. I also use the Cefaly, which decreases the intensity when I have the migraines.
What does your migraine feel like?
Most commonly it’s a stabbing pain, up and behind my right eyeball, and a lot of time it’s throbbing; it’s usually right sided. I do sometimes have left sided migraines and occasionally bilateral but most of the time it’s like a stabbing ice pick behind my right eye and throbbing pain from the forehead to the crown of the head. I also have nausea, and severe light and noise sensitivity. About 6 years ago I started getting blurred vision in one eye when I’d get a migraine.
How did you hear about Cefaly?
I’m a nurse and also a “techy” so I started having newsfeeds set up for areas of interest. I set up a newsfeed for Cefaly when the company was developing the original device. So I’ve been following the results and the testing and everything since then.
What’s your Cefaly experience like?
It’s been a good. I had used tens units in the past so I was pretty prepared for what I thought the Cefaly would entail. I’ve found Cefaly to be an intense experience, but worth it. It has definitely decreased the intensity of my migraines. I used to put the intensity level at an 8 or a 9 on a scale of 1 to 10 and very rarely did I have a migraine that was a 6. Now, more often than not I might have one that’s a 1 or a 2. This also helps to give me a longer window to take my triptan and use the acute mode of the Cefaly. Since starting Cefaly preventative mode daily, I often only know I have a migraine because of the vision disturbances because I don’t feel any pain. Before Cefaly and before nortriptyline I’d have some migraines that would last three days. I was having at least one a week and sometimes three a week and that could take over the week. For the long lasting ones, I would have to take a migraine cocktail similar to what we’d give in the ER. That was when my doctor said we should try something else. I love my Cefaly. Prior to Cefaly, I would frequently have episodes that rendered me bedridden for at least 12 hours and about half the time they would not respond to a single triptan dose.
What made you want to share your story?
I see the testimonials on the Cefaly website and follow the company on Facebook and since Cefaly is expensive I read a lot of testimonials about it before I was ready to commit that kind of money to it. I think offering my story gives people a wider access to the possibilities that there are with it and that way people have an opportunity to get some relief.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.