Tim: Cefaly device has been successful

Age: 68
Location: Chicago, IL
Years with Migraines: 18
Occupation: Sales/Admin
How long have you had migraines? 18 years

When do you usually get migraines?
Early on I would get migraines at all hours of the day and night and almost every day. Now, through medical assistance, medication (including Cefaly), and trial and error, I mostly get headache pain between 2am and 5am several times a week.

What have you tried pre-Cefaly?
There is very little that I have not tried. I was under the care of a neurologist for more than several years. I was also hospitalized twice under his care. He told me that I had tried every “conventional” migraine treatment that he could prescribe. I was religious in taking each medication prescribed, starting at a low dosage and all the way up to the maximum dosage he prescribed. He told me that I had an unusually high threshold for taking the medicine he prescribed. During our last meeting he said that the one last treatment that he could prescribe was lithium but he was reluctant to write me a prescription. At this point he basically terminated his treatment of me.

I should say that I respond very well to sumatriptan and have from the very start. My goal in using the Cefaly is to find preventive help on a more permanent basis.

What does your migraine feel like?
I get a sharp pain just over and behind my right eye; my headaches consist of the same pain every time. My more recent headaches now feel more like tension headaches that extend across my eyebrows.

How did you hear about Cefaly?
I am the recipient of much migraine prevention correspondence from my network of friends. One of my friends in Florida, who has been especially helpful, read about Cefaly and informed me.

What is your Cefaly experience like?
I am a long-time Cefaly user. I have been using the original Cefaly for at least 4-5 years. I usually sit through two consecutive sessions of 20 minutes each.  Most of my use has been for preventative purposes and therefore I press the switch twice during pain-free periods. On the occasions that I am experiencing pain I press the switch once and I do feel that my use of the Cefaly device has been successful when I am experiencing active pain.
It’s hard for me to determine how the Cefaly has helped me in a preventative sense. Even though I am a long-time user I still get a pretty good buzz feeling during and for a short time after use. I did stop using the Cefaly for a several month period in the last 9 months or so as my headaches seemed to subside. However just before Christmas 2018 I decided to get back to the treatments and now I use the device almost every day.

I am a big believer that migraine pain is somehow related to agitated nerves. Cefaly is a great way to stimulate and calm down those agitated nerves.

What made you want to share your story?
Unfortunately migraines have become a huge part of my life for a long time. I don’t think that anybody should suffer from migraines and this is my attempt to help in any way that I can.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Lynn: the Cefaly works

First Name: Lynn
Age: 61
Location: Minneapolis, MN
Years with Migraines:
Occupation: Teacher

 How long have you had migraines?
I’ve had migraines my whole life. I’ve had them since I was 8. I fell on my chin. I had my arms zipped up in my coat and got pushed on the playground. That’s the one incident I remember that started the headaches.

When do you usually get migraines?
Weather is a trigger for me. There are some foods that I have to avoid (dairy, a lot of chocolate at once, bacon, sausage, etc.) I’ve gone through menopause so hormonal changes aren’t a problem any more. Different scents (perfumes or strong odors) can set off a headache that turns into a migraine.

What have you tried pre-Cefaly?
Everything! Since I’ve had migraines for so long I’ve tried every drug that there is. I’ve also done acupuncture and that actually worked for me for a while. I tried neurotoxin injections – that worked too but I had to keep going back for it to continue to work every 2 or 3 months and my insurance wasn’t paying for it. It wasn’t worth it for me to pay out of pocket because it wasn’t lasting long enough. I’ve also done biofeedback and that didn’t work for me. I get massages every three weeks and my insurance pays for that. That helps to relax my neck muscles and has made a big difference in my general well being. I’ve also tried chiropractic care. I still wear a Denpax patch. I’m also on a new CGRP-inhibitor that I inject myself with once a month.

What does your migraine feel like?
About 90% of the time it’s on the left side of my head and it’s like a tight band stomping on my head. Sometimes it’s like there’s a nail pounding inside my head and it’s always just right in that spot.

How did you hear about Cefaly?
I read about Cefaly online and it was when it first came out in Canada. It wasn’t available in the U.S. yet.

What’s your Cefaly experience like?
To begin with it was just OK. I never had the one with the big band, I had the smaller magnetic one. It seemed to help my headaches so I just continued using it. It never took my migraines away but I liked the fact that it made a difference with my headaches so I used it all the time. When I got offered to turn that one in and get the DUAL one, I jumped at the chance to do that and I have only used the hour-long setting and I only do that when I have a migraine. Every time it has taken my migraine away. I am just amazed. That’s the thing that is now so wonderful about this device. The 20-minute one made my head feel OK but the hour-long acute setting when it stops and my head is tingling my headache is gone. The first time that happened I was laying on my bed thinking “Oh my gosh, I don’t believe this.” It was a really wonderful thing to have that realization. I go to a pain center and that’s where I got the prescription. I told my doctor there how wonderful it was and you have to prescribe this to people. I’m just amazed it’s worked every single time.

What made you want to share your story?
I want people to know that it works. I’ve read other people’s stories about things working and I think: “Really is that a real person?” I want other people to know what my story is too. What’s so different about this for me is that this works so well for me is just amazing. I don’t know if it’s that I’m also using these drugs as well; I don’t care. The Cefaly works and I want people to know that. I’m always telling people about it.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Cefaly helps Nancy need less migraine medication

First Name: Nancy
Age: 54
Location: Auburn, MA
Years with Migraines: 41
Occupation: Housewife/Stay at home mom
 
How long have you had migraines?
I’ve had migraines from the onset of my period, so since I was 13. I’ve been medicated for migraines since I was a teen.

When do you usually get migraines?
I don’t get them now. I rarely get them. When I used to get them, I would tend to wake up with them or they would come on with a sharp pain right above my eye area but I don’t know what started it. Stress was a contributor. My husband worked with the U.S. State Department and we were trailing overseas.

What have you tried pre-Cefaly?
If you name the medicine, I’ve been on it except for the newer ones the past couple of years. I’ve also tried massage, acupuncture, vitamins, neurotoxin injections, I’ve done it all.

What does your migraine feel like?
It was a sharp pain above my right eye and if it went on it would transfer over to my left eye and then I knew – forget it. I’d have nausea and have to be in a quiet room.

How did you hear about Cefaly?
I was in Bangladesh, where we lived for the past few years because of work, and I had read about it. When I got back to the U.S. I found a good neurologist and I told her I wanted to get off the topiramate and start using the Cefaly device and she gave me a prescription for it.

What’s your Cefaly experience like?
I’m down 25 mg from 400 mg of topiramate, it’s amazing! I swear it’s from the Cefaly device. The first time I used the device I had to work up to the full 20-minute preventive session. I have traumatic brain injury and have a hard time remembering to do things, so we decided we’d use it every night during our favorite TV show. I learned to do it, it was worth it. I still use a rescue medicine but it’s very rare. If I feel a headache now I’ll take a couple what migraine person takes a couple Acetaminophen? That’s ridiculous. I used to laugh at people who would have a migraine and take a Acetaminophen. I haven’t had to cancel my plans. I haven’t had to not go somewhere because of a migraine in a couple of years. When I tell people it’s changed my life, people don’t understand. Because of my brain injury, I have no memory, I’m unable to lie. My pocketbook was full of migraine medicines before. Now I just keep one rescue drug in there as a back up. I used to get migraines about 10 times a month and the doctor refused to put me on a preventive so I had to get MEDVAC from Bangladesh to get placed on a preventive. Now I can’t tell you when was the last time I had one. It’s not fair to say I don’t have any. I’d say up to two times a month I’ll take an abortive medication but I’m not bed ridden.

What made you want to share your story?
I want you to know how successful the product is. It’s had a positive affect on me and I’m a tough patient, I’m not a good patient.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Barbara: Cefaly is a ‘remarkable breakthrough’

First Name: Barbara
Age: 60
Location: Seattle
Occupation: Retired medical assistant

How long have you had migraines?
I started suffering from migraines as a child. I grew up in the 60’s in Iowa, and at that time my parents nor I knew what migraines were or to seek treatment for such a medical problem as this. When I was 32 years old, I have a vivid memory of having a terrible migraine, which is what lead me to a doctor for treatment. This was 28 years ago. I continued to suffer from migraines so significantly that my primary care physician referred me to a neurologist for a medical help. This neurologist diagnosed me with a rare genetic disease in which one of the main presenting symptoms is migraines. The disease is called CADASIL.

When do you usually get migraines?
There are many contributing factors to my migraines. Foods with preservatives, sulfites, or nitrates, perfume scents, stress, weather, and when I was younger, hormones also contributed to my migraines. All these things still impact me but now that I am older the main contributions are weather, especially windy and barometric changes in the weather, a change in sleep habits, and stress. I do avoid alcohol, excess of sugar, cured meats, fast food restaurants where the food is not made from fresh ingredients. On vacation when my sleep pattern and exercising habits have been disrupted, I do as much as possible to recreate normalcy by taking my own pillow, resting when possible and exercise, all of which are a part of my daily routine.

What have you tried pre-Cefaly?
What haven’t I tried over the 28 years? I have tried every medication available. With the disease CADASIL, some medications are contraindicated, so I am not allowed to take these. Other medications have helped temporarily. I have tried biofeedback as well. Acupuncture has been the most beneficial for me. It not only has help with reduction of daily migraines, but also scent irritations, and the ability to eat dark chocolate. I am truly thankful for acupuncture.

What does your migraine feel like?
When I suffer from a migraine, my comprehension skills are completely void. I become fatigued, weak, experience gastrointestinal distress, have auditory sensitivity, see visual flashing, my breath also changes, and my head feels like it is being squeezed, going to explode, or being stabbed. Truly all these symptoms happen simultaneously. It is a complete breakdown of my systems and often I can not cope. Going to bed to “reboot” like a computer, as my husband says, is often how I have had to manage. Those who are close to me can see visual changes in my affect saying they can now tell when I am coming down with a migraine.

How did you hear about Cefaly?
I have a new Headache Neurologist who introduced me to the Cefaly product.

What’s your Cefaly experience like?
My experience with the Cefaly product has been positive so far. I have had it for over two weeks. I was in a phase of having a migraine every day and the device has interrupted this cycle. I intend to use Cefaly every day, and can also simultaneously incorporate biofeedback and relaxation during the 20 minutes preventive treatment.

One of the greatest benefits to the Cefaly device is that is not damaging to the internal organs like medications are. This is a remarkable breakthrough in science. I look forward to living a more quality lifestyle thanks to Cefaly treatment.

What made you want to share your story?
In sharing my story, it is my hope people who suffer with migraines are encouraged, especially with the rare disease of CADASIL, who have migraines and are looking for a treatment. You who have CADASIL, speak with your doctor to see if this treatment is right for you. It has helped me and my hope is that it will be of great health benefit to you as well.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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Megan: I rely on Cefaly

First Name: Megan
Age: 44
Location: Boston, MA
Years with Migraines: 20 total; 10+ severe migraines
Occupation: human resources – director

How long have you had migraines?
I got them occasionally in college but I knew then that I was overtired and if I took a nap they went away so I didn’t worry about them too much. Then about 8 or 9 years ago I was driving down a highway and was struck blind by this unbearable pain. I went to work but left early to go to the doctor and I just curled up crying in the doctor’s office with the lights off; they had to give me a shot of ketorolac so I could get home. I spent the next two weeks on the couch with barbiturates and I’ve ben suffering with migraines consistently ever since. I get about 20 migraines a month.

When do you usually get migraines?
My migraines are multi-faceted; they have physical causes and other causes too. I have fibromyalgia. Also, bright lights can cause my migraines, things I eat can cause my migraines. Anything can cause a migraine for me — if it’s Tuesday it can cause a migraine. When I go to a restaurant; for example, I have to look around and see how the lights are set up because if I sit in the wrong spot it’ll trigger a migraine. All that stuff people think looks romantic has to be rearranged. I’m constantly using condiments to block the lights.

What have you tried pre-Cefaly?
I still watch my diet and exercise. I’ve tried acupuncture, chiropractic care, massage therapy. I take every pill under the sun and I take the strongest level of every medication out there.

What does your migraine feel like?
The ones I call the “day killers,” those that render me completely useless, where I’m curled up on the couch feel like my head is going to explode. It feels like my brain is expanding and going to break the boundaries of my skull and at the same time like there’s a vice on my head. It’s as if the two are having a competition to see which one is going to kill me first and it’s truly unbearable.

How did you hear about Cefaly?
My doctor told me about it. At the time it was new and I think he was skeptical bit I’ve since been pushing him to recommend it to more patients.

What’s your Cefaly experience like?
The Cefaly is a big reason why those day killer migraines don’t happen as much any more and it also helps with my TMJ; that’s what I first noticed it was helping. The daily 20-minute setting helps relax everything on your face including the jaw muscle. When I first got Cefaly in 2014 it was only for preventive treatment but when I had a really bad migraine I would use the device to abort a migraine even though it wasn’t technically designated for that. Now that there’s the acute setting, at least a couple nights a week I sit on the couch turn on the hour-long session and watch television and I may or may not fall asleep with the dog on my lap and the Cefaly on my head. And I’m very very happy! Otherwise I just sit there and the bones in my face hurt but if you turn on the Cefaly that just goes away and it’s the most amazing thing. My migraines don’t have the same frequency and severity that they used to. I now use my acute medication for the work days. My insurance only gives me a certain amount of pills a month and on the weekends I rely on Cefaly the most to help me.

What made you want to share your story?
I just feel like everybody should know about this. It is truly what allows me to get through my week. I have a difficult job and I have a lot of physical issues that could prevent me to do a job that I love and that helps support my family; so something like the Cefaly helps me be able to work. My grandmother used to go lock herself in a room for 3-days at a time because of her migraines. I don’t have that option so I want people to know about this. There’s no reason for them to suffer.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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