Location: New York, NY
Years with Migraines: 4
How long have you had migraines?
I’ve had migraines since I had a brain injury in 2013. I might have had them before the accident that but they were never all that bad; now they’re daily and can be horrendous.
When do you usually get migraines?
There are definite triggers. Fluorescent lights are the worse, smells are huge (tobacco or any kind of smoke is a huge trigger, as are really heavy perfumes or industrial room fresheners) but they are also triggered by looking at a screen for more than a short time or flashing lights.
What have you tried pre-Cefaly?
I’ve done a number of things in conjunction with Cefaly. I’ve tried neurotoxin injections, nerve blocks, amitriptyline, acupuncture, triptans, beta-blockers. I’m currently on cyproheptadine. I started the Cefaly 16 months after I’d had a severe concussion. The first 30 months after the accident, the migraines were really severe but they’ve gotten to be less severe (except occasional break-thru), though still daily. Since there is a limit to how many time a month you can take Sumatriptan, I’ve found when I can’t take medicine using the Cefaly helpful. I use it not just prophylactically but also when I have a migraine which can sometimes alleviate the pain.
What does your migraine feel like?
My worst migraine is like an ice pick sticking inside my eye and it goes through to my occipital joint.
How did you hear about Cefaly?
I’d heard about it from a few neurologists.
What’s your Cefaly experience like?
I definitely find it helpful and recommend it to people. Sometimes I’ve had issues with the electrodes not being sticky enough but overall I think it’s helpful to have something I can do that isn’t medication. I’m currently pregnant so I’m very limited in the medications I can take and the fact that I can still do Cefaly has been great. I think if nothing else when I’ve had migraines that triptans won’t stop and when I’m having one of those 72-hour migraines, the Cefaly sometimes gives me a break and much-needed relief from the pain. Also, sometimes if I can use it right away it’ll stop the migraine.
What made you want to share your story?
I was glad I found out about Cefaly. It was something else I could do and because it’s a new type of medical intervention some people are suspicious of it. I myself was a bit nervous at first, and I am was very glad that I knew I had to start slowly on a low setting and build up the intensity gradually. I’m very sensitive so I couldn’t do a full session from the beginning. It’s hard to tell with migraines. They don’t disappear forever but think has been another really useful tool.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.