Location: Concord, New Hampshire
Years with Migraines: 50+
Occupation: Retired from medical transcription
How long have you had migraines?
I’ve had migraines since high school.
When do you usually get migraines?
A change in weather will usually trigger a migraine; bright sunlight will trigger one too.
What have you tried pre-Cefaly?
Before Cefaly I tried several things but the only medication that worked was a medication that was a combination of acetaminophen, butalbital, and caffeine but I’m also on coumadin and I’m not supposed to take much of the pain medication that works so I was basically trying to suffer through it and use an over the counter medication. I’d also go to a dark room where it’s quiet and if I could get to sleep maybe I could break it but that took up a lot of time.
What does your migraine feel like?
Most of the time it’s on the left side of my head and if I don’t catch it as soon as I know I’m going to get it, it will get out of control and even with medication it won’t go away. I also feel the migraine behind my eye and it’s a steady pain. I would call it more pain than discomfort. I’ve had two or three instances over the years where it got to the point where I was vomiting and couldn’t open my eyes to any kind of light. I remember calling one of my sons to come get me so we could go to urgent care. I couldn’t turn the light on to call him. I had to feel the keys on the phone in the dark and realize which ones were which so I could call him.
How did you hear about Cefaly?
My neurologist told me about it.
What’s your Cefaly experience like?
It’s a Godsend. I find myself during the day realizing that I don’t have a headache and that I haven’t had one in a while and ‘isn’t this nice.’ I feel I have more energy to a point where I’m getting more things done. I always had this dull pain that was present. It was either a migraine or it was a headache that might turn into a migraine or it was a ‘migraine hangover’ as I call it. I didn’t have the motivation to get things done. I like that with Cefaly there aren’t any side effects and I don’t have to worry about taking too much medication that could interfere with the coumadin. I’m also on going to be tapering off the topiramate, which I’d been taking twice a day for migraine prevention. Before Cefaly I’d have about six migraines a month or more and since I started on the Cefaly about two months ago I’ve had two total within those two months.
What made you want to share your story?
I want everybody to know about Cefaly! Everybody that suffers from migraine needs to know about this because they’re trying all kinds of medications or suffering through it. I know what it’s like. I’m retired now but there are people who have to miss work. I was a stay at home mom who couldn’t just leave three little boys alone and go to a dark room. I think everybody needs to know about Cefaly. I’ve been telling everybody I know who has migraines to ask their primary care about it or it they have a neurologist to ask their neurologist about it. Cefaly is really life changing.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.