Location: Myrtle Beach, SC
Years with Migraines: 63
How long have you had migraines?
At the age of 3 I was telling my mom I had a knee ache in my head. She cut my hair thinking it was the use of headbands and barrettes but I’m pretty sure it was migraines back then. This was in Europe, a few years after the war and they didn’t believe kids could have migraines. I wasn’t formally diagnosed until my senior year in high school.
When do you usually get migraines?
I very well know my triggers. If I eat chocolate, more than I know I can, I get a migraine. If I drink red wine, or eat American pork, or consume MSG or nitrates, I’ll get a migraine. The weather really affects me. If it’s real windy I am guaranteed a migraine. Humidity makes a big impression. The sun beating down hard will also give me a migraine.
What have you tried pre-Cefaly?
You name it and I’ve tried it. My go-to medication for many years was an over the counter drug that’s a combination of aspirin, acetaminophen, and caffeine. I can’t take that anymore though because of too many years, and other ailments, resulting in kidney damage. I’ve tried physical therapy and acupuncture, dry needling, repeated occipital nerve blocks, and neurotoxin injections but I had to have double eye surgery after the neurologist put the neurotoxin injections too close to my eye nerves, causing damage to my peripheral vision.
What does your migraine feel like?
It’s usually in one eye but in the last 4-5 years it’s also been in the back of my head. This is a new location for my migraines and it started when we moved to the south. It used to mainly be across my forehead. I’ve been dealing with migraines for many years so usually if I have one – and especially back when I worked — I would just push through it though if it gets really bad I need to lie down in a room with blackout shades.
How did you hear about Cefaly?
I think I read about it online because my husband calls me Google Girl and I asked my neurologist about it.
What’s your Cefaly experience like?
I used it every morning for the first 3 years, now I’ve mostly tapered off. It was working very well. I wouldn’t say it was perfect but I had breakthroughs. I felt good and since I already felt I’m over-medicated from my other issues, it feels really good that Cefaly is non-invasive and not another pill to swallow. I get fewer migraines now than I used to. I think it’s a combination of things – I definitely stay away from my triggers and the Cefaly and the nerve blocks really have helped.
What made you want to share your story?
There are more people that suffer from migraines than anyone can even imagine. It took me years to find a doctor to even diagnose me. I think people should hear that there’s something out there you can do to manage your migraines that’s not taking a pill. I think especially men should know about it because they get migraines too but it’s often not talked about as much. I guess they might feel taking a pill is not manly but they can use the Cefaly device. Plus, it doesn’t damage your kidneys and it’s non-invasive.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.