Location: Gainesville, Florida
Years with Migraines: 13+
Occupation: Nurse Practitioner
How long have you had migraines?
I’ve had migraines since I was 21 years old, so approximately 13 years.
When do you usually get migraines?
They’re hormonal mostly. A day or two before my cycle I usually get them.
What have you tried pre-Cefaly?
I was put on anti-epileptic medication at first, then migraine medications — both prescription and over-the-counter but I’m extremely sensitive to medication and started getting indigestion. I started taking an anti-acid so that I could take my anti-migraine medications. I don’t have migraines daily but when I get them they’re terrible.
What does your migraine feel like?
It usually starts with a white squiggly light, an aura, that lasts about 3 minutes and then turns into a big line, which then turns into a ‘c’ and then ‘y’ and then a headache starts; usually on right side. I get super nauseous. I want to shoot my head off. It’s just torturous, my eye pain, my right eye, sometimes is worse than headache or the nausea is worse than headache. Even when it’s gone it’s not over. It’s like I have a migraine hangover. I’m tired and fatigued, food doesn’t taste right to me.
How did you hear about Cefaly?
I found out about Cefaly through my Medscape (a professional health website). I’m a nurse practitioner. I saw that FDA had cleared new device for migraines about 6 months ago. I asked my doctor, he had heard about it but he hadn’t prescribed it yet. I was trying to get pregnant and I thought it might be a good idea since it’s safe, it’s neuro-stimulation not medication.
What’s your Cefaly experience like?
It took me a few months to get it. When I finally tried it, I went two weeks and I didn’t have a migraine. I thought Is it coincidence? Then I went another month. Then I skipped another one. This is definite. Something’s working. I thought Maybe I can slack off on trying to use it. I stopped using it, I thought maybe I don’t have it anymore but then it came back. I went out of town and didn’t have the Cefaly. I had two migraines but I was not compliant in the use. I know now that every day I have to be compliant.
What made you want to share you story?
I don’t have migraines every day like some people do but it’s changed the dreadfulness of having a migraine. I posted about it on Facebook and lots of people wanted to know if they could share my post with a friend or a friend of a friend’s who had migraines. People who get migraines stick together, they help each other. Cefaly’s helped me and if somebody else can read my story maybe it can help them.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.