First Name: Sandra
Location: Macungie, PA
Years with Migraines: 54
Occupation: Retired (former case worker for children and youth’s services and an organist and choir director)
How long have you had migraines?
I’ve had migraines for 54 years.
When do you usually get migraines?
I avoid alcohol because if I have a small glass of wine within 20-minutes I’ll have a major migraine. I stay on a very strict schedule with my meals and sleep.
What have you tried pre-Cefaly?
I’ve seen neurologists locally, in fact several told me mine is the worst case of migraine they’d ever seen. I’ve been to Philadelphia, New York and Chicago to see specialists. I’ve been hospitalized four times for migraines that I could not get to stop. I’ve tried every medication and only four medications have worked but after a period of time they stopped working (even if f the doctor would increase the dosage) it wouldn’t help. I tried acupuncture for 10 years, massages, and biofeedback for a year a half. I’ve been to many chiropractors, different diets (including going gluten-free), herbs and supplements, increased magnesium. I’ve also have neurotoxin injections and nerve blocks and none of that has worked for me. I still occasionally use Zolmitriptan to abort a migraine but I’m not on any preventive medication anymore.
What does your migraine feel like?
It feels like my head is exploding; my whole head. There’s so much intense pressure I can’t stand the pain. The migraine will usually lasts from 18-20 hours and with that I have nausea and vomiting and during that period I can’t keep anything in my stomach, including water, so I feel dehydrated and that makes my migraines worse. On average I have 12-15 migraines a month. Before Cefaly, I’d never gone a month without a migraine.
How did you hear about Cefaly?
My neurologist mentioned it and said I should try it.
What’s your Cefaly experience like?
I started using the device July 20th (2018), I did the 20-minute session starting at 6 pm and it had no effect. Then I switched it to 11 pm and it still had no effect on me. I was still getting the migraines but it would help when I used the 1-hour acute treatment during a migraine. I was afraid I was going to have to send the device back. Then I thought 99-percent of the time my migraines start between 4-6 am so I started setting my alarm for 3:30 am every day and using it for 20-minutes and going back to sleep and that’s’ when it got rid of the migraines. It seems if you have a migraine that’s really on schedule, if you use the Cefaly device right before, even an hour before, you expect the migraine to start, it helps. I basically stopped getting the migraines. So since August 18th when I started using it at 3:30 am for 20-minutes until the end of the month I only had two migraines. I used it for the one-hour treatment to abort and one time it helped and the other it didn’t. The next migraine was August 31st, which was a real miracle for me to go over a month and a without a migraine. The next one was October 18th.
What made you want to share your story?
Just to let everyone know the success I’ve had because my migraines have been over a long period of time. I’ve had very severe migraines and I’ve tried all sort so of things and nothing has helped except the Cefaly device. I also want people to know that if you have a migraine that tends to start at the same time every day, before you give up, change the time you’re using your device to be within an hour before your migraine starts, that changed everything for me.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.