First Name: Rhonda
Years with Migraines: since 8/2010
Occupation: retired homemaker, RN, BSN, JD
How long have you had migraines?
Migraines started the day after a fall from a segway in August 2010. The first year or two the migraines were solely of the ophthalmological type. They occurred the minute I awoke each morning around 4:30-5 am and lasted for a few hours. I was occasionally dizzy, rarely nauseated, but had extreme visual auras for the duration. By mid-June 2014, the migraines were significantly worse. I had tinnitus; severe nausea; a “trickling” and visceral pain diffusely through my entire skull; muscle tightness/spasms in arms, back and legs; photophobia; phono phobia; anxiety; occasional inability to speak and/or to find the correct words, much like stroke symptoms.
When do you usually get migraines?
Typically I just awake with the migraine in full force. I rarely have triggers as I avoid the only known trigger of artificial food color dyes.
What have you tried pre-Cefaly?
SSRIs, vitamins and supplements, neurotoxin injections, beta blockers, physical therapy, massage, acupuncture, biofeedback, MBSR, meditation and myofascial release therapy.
What does your migraine feel like?
Typically my migraines involve constant aura, nausea, intermittent to consistent dizziness, the trickling/visceral feeling in my head, GI issues. Occasionally have whole body muscle tension/tremor, forget or unable to access words.
How did you hear about Cefaly?
What’s your Cefaly experience like?
I started with the “old” style tiara-like Cefaly. It was not really marketed to those w/ chronic migraine, but we decided it could not hurt to try. I used (and still do) it twice a day for the duration of the pre-set cycle. It never apparently prevented, or even stopped, a migraine. It never apparently reduced the duration or frequency. Since 2014, I have had migraines every day, beginning as described above. Most days, the migraines back way off by mid-morning, and return around 4:30-5 pm. The Cefaly, both the wonderful new tiny version, and the old, had the best effect for me in terms of either decreasing my nausea or making me less aware of my nausea. It helped me eat. There is no way to separate all the different medications and therapies into neat slices of how much/what they do for me. I do know the Cefaly helps ME combat nausea and/or the effects of nausea. There is no way to prove or disprove that it does not in some way reduce my migraines in terms of severity, frequency, and duration. As with most migraine sufferers, if we think that something is helping, we are NOT going to stop taking it, using it, doing it.
What made you want to share your story?
Cefaly gives me definite relief/distraction from nausea and that is the most difficult symptom to ignore/power through.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.