Location: Pittsburgh, PA
Years with Migraines: 26+
Occupation: marketing and advertising by day; bartender by night
How long have you had migraines?
My mom can remember me having migraines when I was as young as about 5. I can remember having them when I was 8-10 years old. I saw a neurologist when I was 18 and that’s when I guess you could say I was officially diagnosed. My dad had very minor epilepsy when he was in his early 20s, so we’re thinking something like this runs in the family but we’re not sure.
When do you usually get migraines?
Historically, I would wake up with them but it can vary quite a bit. I’m very light-sensitive and smell-sensitive. Lack of sleep is a huge trigger. I try to maintain a limited amount of caffeine too — not too much, not too little. Stress is another obvious trigger. I think extreme humidity is trigger as well, I don’t have evidence of that, it’s just a hunch.
What have you tried pre-Cefaly?
What didn’t I try? I went to three different neurologists. I’ve been on every prescription you can think of and all the non-medicative stuff, like acupuncture, massages, psychologists, everything. I did try neurotoxin injections but that
didn’t do much for me and my health insurance changed, so the price went way up.
What does your migraine feel like?
The best way I can describe it is someone is drumming on your brain. It almost feels like my brain and skull are swelling and I get incredibly overheated, pouring sweat, very nauseous, and it’s a really intense throbbing feeling in my brain.
How did you hear about Cefaly?
My mom read a magazine article about it and then I asked my neurologist for a prescription.
What’s your Cefaly experience like?
I’m kind of a comic book nerd, so when I saw it, the first thing I thought is ‘Is this going to give me super powers?’ I was pretending to be Spock. I love it and I use it several times a day. It feels amazing. Truth be told, the first time I used it I went up to 100% intensity. It was intense but I just bit the bullet and went with it. I would say I have now adjusted to it. Sometimes it makes my eyes feel heavy, not fatigued, but my eyes can feel like they’re being weighed down. Before Cefaly it was pretty bad, like 15-20 migraine days a month. I actually had to take 2 month medical leave from work because it was nearly daily. Now maybe I get one migraine a week, maybe even less because I’d say I have 2 to 3 or 4 a month. I also do take one daily prescription medication and I have abortive medication, if I need it. In addition I have medicine that helps with the nausea that I take as needed. The vomiting has subsided quite a bit since I started using Cefaly. I also take less medication, specifically the over the counter kind. I started using Cefaly in August 2014.
What made you want to share your story?
I love the device and I’ve exchanged several emails and I find the people at Cefaly to be very wonderful, very kind, very helpful, and very friendly. There’s like 36 million migraine sufferers and I think we’re all on the same team.
Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.
If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.