Mindy: Cefaly will lessen 10 migraines a month for me

Name: Mindy
Age: 53
Location: Pittsburgh, Pennsylvania
Years with Migraines: 30+ years
Occupation: Attorney

How long have you had migraines?
I’ve had migraines since I was in college.

When do you usually get migraines?
No definite triggers except for perfume and often bright lights and loud noises. I think chocolate contributes to my migraines.

What have you tried pre-Cefaly?
I’ve tried all of the migraine medications. Currently I’m on tricyclic antidepressant and Gabapentin as migraine preventives. I take Rizatriptan as a rescue medication but it often doesn’t work. Sometimes I take Ibuprofen. Sometimes they work and sometimes they don’t. I’ve also been doing neurotoxin injections for 2-3 years. That’s eliminated the migraines that start in the back of neck but it doesn’t work for the ones that start in my eyeball. I started using Cefaly since it became available in the U.S. in 2014. I find the neurotoxin injections and the Cefaly have worked well together because the injections work for the back on my head but I still get migraines in the front and eyeball regions and those can often be lessened or relieved by the Cefaly.

What does your migraine feel like?
It’s just like a knitting needle going through my eyeball and it’s usually on my left side. It starts on the left but will often spread — not to temples — but to forehead and to my scalp. It gets to the point where it’s hard to open my eyes. The knitting needle pain feels like a sharp stabbing pain through my eye and my scalp often feels like it’s in a vice grip, like it’s just being squeezed.

How did you hear about Cefaly?
I heard about it on the news when it first came out.

What’s your Cefaly experience like?
I first got Cefaly I when it came on the market and now I have Cefaly II, which is more compact so it’s easier to take along to work or on vacation. I don’t use the Cefaly daily so I can’t say how many migraines it would prevent.  I use Cefaly when I have a migraine and it feels very good while I’m doing it. It feels like the parts that hurt are getting a massage. Sometimes the Cefaly will relieve my migraine so it goes away.  When it doesn’t totally relieve it, then cefaly will usually reduces the pain. I often need to use Cefaly through 2-3 cycles in a row, so I am using it for 40 or 60 minutes.   When I have a bad headache or migraine and I can’t sleep at night because of it, then I’ll put the Cefaly on for a session or two and it will relieve it enough to put me to sleep.  Cefaly often makes me sleepy and I fall to sleep during the first or second session and take a short nap, which also helps relieve my migraine. Cefaly has definitely been positive for me. I do think you have to get used to it. It took me a couple weeks to get used to the sensation. I still rarely use it on maximum strength. I like Cefaly II because it can be increased immediately to the strength I need and then if I need to adjust it stronger or weaker then I can do that while wearing it.  The original cefaly takes about 5 minutes to get to the strength I need and once I stop it a specific point, I can not increase or decrease the strength, like I can with Cefaly II.   I’d say that in a month Cefaly will lessen 10 migraines for me and eliminate three to five migraines.

What made you want to share your story?
When I was thinking about trying Cefaly I wanted to see how it was working for other people but at that time there was no information. So, for the next person thinking about Cefaly I wanted to be able to give them my information to help them determine whether it might be right for them.

Want to share your story too? We’d love to hear from you! Please send an email to m DOT coder AT cefaly DOT us. Please include your name, contact information, and let us know where you’re located so we can set up a good time to talk.

If you’re wondering if Cefaly is right for you, click here for more information and, of course, check with your doctor.

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